July 5, 2014 3:59 PM Subscribe
Rheumatologist threw up her hands. Now where do I go?
posted by kathrynm to Health & Fitness (12 answers total) 5 users marked this as a favorite
First, YANMD, TINMA, etc.
I saw a rheumatologist a couple of week ago because my PCP refuses to treat my fibromyalgia symptoms. She made no medication changes to what my last rheum (in Korea) prescribed before I left there last year. I have terrible joint pain in my toes, fingers, wrists, elbows and shoulders. I take Meloxicam (a NSAID) but it helps little. The pain and stiffness is worse in the morning.
She ran a RA antibody test, ANA and sed rate. The RA and ANA were negative. The sed rate was very high. My vitamin D was also low (28 where the low end of normal is 30) but that wasn't a surprise (it's been as low as 9). Although she didn't run one, my CRP was elevated in the past. It's my understanding that both sed rate and CRP are nonspecific indicators of an inflammatory process.
She told my the sed rate isn't rheumatolgically relevant and doesn't want me to take a D supplement (I'll be asking my psychiatrists opinion on that WRT depression).
I've probably had fibro for 20 years, but only diagnosed about 5 years ago. The joint pain started after a severe infection from a cat scratch, including a septic knee.
Where do I go from here? Is there another specialist I should be consulting? All my doctors are from University Hospitals. Should I seek out a second opinion with someone from the Cleveland Clinic? Both hospital systems are nationally recognized, so quality of care isn't an issue. But all my UH records have the fibro dx on there and I'm wondering if that isn't hampering my care. As in all the pain is getting attributed to fibro without regards for some other process. What I need is Dr. House to take my case.
In case it's relevant other symptoms include widespread muscle pain and spasms, depression, menstrual migrates (on continuous HBC), dry mouth/eyes/nose and trouble with concentration/memory/learning.
*Or do I just need to learn to live with the pain/stiffness/etc and do my best with medication management?*