Endocrinology anyone? Low Glucose - What do you make of this...
September 28, 2012 10:38 AM Subscribe
YANMD - I just discovered from 2 recent bloodworks that my 15 year old son’s non-fasting glucose levels are in the mid-60’s after eating what could be considered a “carb bombs” – cake, hot chocolate among other carby things. Is this some rare condition that no one has heard of? Something like the opposite of diabetes? Or does this mean nothing at all?
posted by jamesalbert to health & fitness (21 answers total) 13 users marked this as a favorite
Background - For years we have been on this medical odyssey. He’s been complaining of headaches since first grade. The headaches were probably there prior to then but he was unable to accurately express it. He originally stated it was eye pain. He has been dealing with stomach discomfort/gas since birth. We’ve been all over, multiple specialists in neurology, gastroenterology, endocrinology, ophthalmology, etc etc etc... at four major medical centers in the eastern PA area. No one is connecting the dots.
The last neurologist stated flat out that this is not migraine headaches and referred us to GI. GI doc was like “Idunno...” and at the second visit stated flat out that “no one at (their HUGE medical center) seems to have an interest in carbohydrate metabolism”. We were once again dead in the water...
It’s definitely food related, primarily around processed foods that contain Corn Starch, Maltodextrine, most fruit juices, among others. This stuff will cloud him up, can get emotional, attitudinal, wanting “stuff” to the point of not letting it go, and if it’s enough of a hit he’ll get a headache that will lay him flat. The biggest hits have him seriously throwing up. (those episodes are only relatively recent, the first of which ended up in the ER resolving on its own without a medical cause found by ER docs)
Advil Gel Caps have been the medicine of choice and resolves the problem. (interestingly, regular Advil does not work, we suspect, due to the microcrystalline cellulose used as a filler)
We finally found a sympathetic GI doctor at a major medical center in NYC. All of her testing was negative. While doing bloodwork when trying to provoke a reaction looking for metabolism oddities, we discovered that after eating, his non-fasting glucose level is low – mid 60’s. (fasting glucose levels have been always normal) She has now referred us to a colleague in endocrinology.
Question – does this look like hypoglycemia to you? Is his body overcompensating for the carbs/sugars he is consuming, essentially crashing his glucose levels to the point of hypoglycemia? Is this some wildly rare condition that the medical community is not aware of? It kinda looks like the exact opposite of diabetes.
He is otherwise healthy, looks/sounds good (especially when he is eating "clean") but at this point overweight (5’8” 180 lbs) probably because he’s craving carbs from low blood sugar.
I’m posing this question because we are continually getting shot down by presumably high-level major league doctors. We are basically left to do our own research. We noticed/questioned the low glucose levels ourselves. Our appt with endo doc in NYC is coming up in a couple weeks based on this new evidence. Are we on to something here or is this yet another red herring?
Can anyone offer any thoughts on this? Has anyone ever heard of this? We are genuinely afraid of getting shot down yet again.