Tell me about Tetralogy of Fallot and how it affected you.
November 11, 2011 5:40 AM Subscribe
Our son couldn't wait another two or three weeks to come out of his mums tummy so he popped out on Tuesday morning. But he's had a rough first few days of life. There's numerous issues, the most serious of which is a heart defect (teratology of fallot). Tell us it's going to be OK, drawing on your experience with this to help reassure us.
posted by Effigy2000 to health & fitness (19 answers total) 2 users marked this as a favorite
After a seemingly fine first day of life, our son, Edison, was diagnosed with jaundice, then a possible infection (he's on an antibiotic drip to be sure) and finally a heart murmur, which eventually (today) was revealed by a cardiologist to be tetralogy of fallot (ToF). Now he's in intensive care, just as a precaution, apparently.
The jaundice appears to be on the mend and the infection should (hopefully) be gone by tomorrow. But its the ToF thing we're most worried about. Edison will need surgery in about six months and between the cardiologist and Dr. Google we're told there's a very good chance he'll be fine following the surgery, which is apparently pretty straight forward. Apparently on the scale of how bad ToF can be, his is somewhere in the middle. I'm sure they're right but with everything else going on, we're obviously both stressed and worried. I think hearing some personal stories from parents and people who have or have dealt with this condition might help reassure us right now.
Any advice or insight would be appreciated. Thanks in advance.