Before I formed you in the womb I knew you...
September 4, 2010 4:26 PM Subscribe
Did you have a baby that was diagnosed with a birth defect on ultrasound? How did you cope?
Two weeks ago we had a consult with a geneticist following my wife's 20 week ultrasound. They discovered a fairly serious defect in our baby's intestines that, while easily reparable with surgery, may in rare cases be a marker for an absolutely horrific genetic skin disease.
We're trying to decide whether or not to roll the dice and move forward with the pregnancy. The odds are extremely good that she will have a surgery after delivery and live a perfectly normal life. But there is a slim chance that she will die immediately upon delivery, and a slimmer chance still that she will survive and live a short life of pain and humiliation.
We're devastated, as you might imagine, and are trying to figure out what to do. I can find out plenty about the particular conditions we're looking at on various community boards. But nobody tells you how to keep moving forward with your life while you try to figure this shit out.
If you've been through something like this, how did you cope? What did you do to keep from eating one another alive? I've got the ethical and philosophical side of things pretty well locked down, so I'd be most glad for the practical and creative advice you've got.
Bonus irony for those of you keeping score at home.