I am killing myself because I can't get over the past. Please help me take control of my disease.
I was diagnosed with insulin-dependent diabetes ("type 1") at 17, 20 years ago. The lessons I learned then are killing me now, and I'm running out of time to change my life. I don't have any serious complications yet, but I'm way past "pushing my luck" and into "the bill is coming, and it's a killer" territory.
When I was diagnosed, my parents and doctors represented my diagnosis as a cataclysmic end to most of the options in my life: I heard endlessly about what I could no longer do, and the things I could no longer aspire to, from food to life choices. "You can't have ice cream any more" to "you can't try to be an actor, because you won't have health insurance and you have diabetes and have to pay for insulin". I was also subjected to endless stories about the gruesome ways in which I would die if I didn't absolutely regiment my life in every possible way, from diet to exercise.
I was not, to put it lightly, receptive to this line of attack. My reaction was to say "fuck you, I'm going to live my life the way I want and how I want, because I'm not going to imprison myself". Very 17-years-old of me, and very reactive.
The direct consequences of this mindset have been terrible, and are going to become more and more dire if I don't get my shit together. Here are the facts as they currently stand:
- My last HbA1c was 10. That's horrifyingly high, and practically corresponds to uncontrolled diabetes. It needs to be somewhere between 6 and 7.
- I take too much insulin, and it's hurting my weight.
- I am overweight by nearly 80 pounds, and it's not getting much better. The excessive insulin use contributes a lot to this, but so does the basic attitude.
- I'm already hypertensive: maybe it's the weight, maybe it's the diabetes, but either way my heart is paying.
- I've been lucky with my eyes: my eyesight hasn't degenerated in about 20 years, and there's no sign of retinopathy, but if this keeps up, there will be.
What this boils down to is that I have a nearly unshakeable attitude that to compromise my lifestyle at all means knuckling under and letting diabetes control my life. That if I make the choices I have to, I will be turning myself into a victim, and letting my disease run my life in every particular. And, as a result, I'm not exercising any control at all.
This is the attitude of a 17-year-old teenager who had everything taken away from him, combined with the state of late-80's/early 90's diabetes therapy.
That was then. Now, I'm 37 years old, and diabetes treatment is light-years ahead of where it was: I have an insulin pump, I even have access to continuous blood glucose monitoring if I want, and between the two of these things, there is
nothing I can't do, almost literally. There are Olympic swimmers with insulin-dependent diabetes. There are firefighters. There are Antarctic explorers.
I need to hear stories, firsthand stories from MeFites, about how you took control of your disease, whether it's diabetes or not. I absolutely do NOT need more stories of life lived at the behest of a disease: I need to know that it's possible to own diabetes and control it without letting the disease control every aspect of my life.
Please help me: I'm stuck at 17, and I have a lot of good-reasons-at-the-time for that, but the way I'm living is killing me. I need help to see the light, and I'm hoping that AskMe readers, who I respect as a group, can help me do that.
update: I'm working with a therapist, a good one, on the issues with how my parents (and doctors) handled the diagnosis. Clearly, there's some psychological holdover there. However, addressing those issues (and they are being addressed productively) isn't getting the job done: I need some positive reinforcement on the disease front.
No. You have a nearly unshakeable attitude that to compromise your lifestyle at all means knuckling under and letting your parents control your life.
This has nothing to do with diabetes at all. Your parents did not treat you well in many ways and used manipulation and fear to attempt to control you. In order to survive their treatment of you, you adopted a bunch of defense mechanisms which, while keeping you free of manipulation and ill-treatment from them. Now that defense mechanism, which literally meant life for you back then, is harming you now.
The key is letting go of your hurt, anger and disappointment regarding your parents. Usually therapy is required for that. The rest will all fall into line.
posted by Ironmouth at 11:32 AM on March 23 [8 favorites]