Tips for parenting with chronic illness
November 18, 2008 10:49 AM Subscribe
What are your tips for parenting small kids when you have a chronic illness?
posted by anonymous to health & fitness (10 answers total) 3 users marked this as a favorite
It looks like my chronic illness is coming out of remission after 3.5 years. I have children aged four and one. I'm a married stay at home mom and I have a successful, growing side business. My Crohn's Disease appears to be coming out of remission and it is probably at a 2/10 right now, in terms of how problematic it is (and compared to it's worst, which would be the 10). But it's been three weeks of this and I'm starting to get exhausted and my kids are tired of it. It's very difficult to be even a slightly attentive parent when you're running to the washroom for 10 minutes of every 30-60, if not more. And it makes getting out and doing normal things a bit of a challenge.
If it was just me, this flare up would be a downer, but not unbearable. It's just that learning how to manage this as a parent is the tricky bit. I try not to think about what I'll do if I become sicker. I try to focus on getting well and being the best parent I can be.
My husband and I do not have family nearby. I don't have any childcare, other than a couple of hours of preschool. I don't really want my kids in daycare or with a nanny. That's why I'm at home. But I recognize that I cannot control my illness and that I may need to consider child care if it gets worse or even stays like this for an extended period of time. (I am #300 on the waitlist for daycare and it is *incredibly* difficult to find a part-time nanny where I live.) So let us assume that, while I will explore child care options, it's not really something I can consider further. All my friends are either working or run their own businesses and can't really do more than provide very occasional emergency baby sitting.
So, ignoring child care, what are your tips for parenting small children when you're dealing with a chronic illness? I recognize that Crohn's is not the only or worst thing out there and that people parent while managing difficult health conditions all the time. But I'm new at this. So your tips are welcome. Thanks.