My 2 1/2 year old son will be having lung surgery next month and I'm looking for suggestions on how to help him cope during his inpatient stay. Also, on managing parental pre-surgery anxiety.
My son was diagnosed with a CPAM
(congenital pulmonary airway malformation) while still in utero. It takes up his upper left lobe. Next month he's going in for surgery to remove that lobe via VATS (video assisted thorascopic surgery). He's expected to be in the hospital up to a week, depending on how his recovery goes. I'm hoping to hear from people who've gone through something similar with children, in terms of going in for major surgery, being in the hospital, etc. And if you've gone through this particular surgery, even better.
1) What are some ways to help a child that age through a hospital stay that is expected to last a few days? I'm thinking toys, games, and videos to help with distraction, but is there something else we can do that isn't immediately obvious?
2) I'm bracing myself for seeing him in pain. There will be pain control available to him, but there will still be some pain. Other than being there for him, in what ways can we help him through it?
3) I'm looking for ways to cope with all the anxiety I'm feeling about this. Are there any good resources out there that focus on parental anxieties pre-pediatric surgery? Maybe I'm not googling well enough but I'm trying to find something that deals with this particular scenario and not general "how to deal with anxiety" stuff (which I'm not discarding at all, but I'd also like to find resources that hone in on this in particular). If you've been through this, what helped you prepare? I know that my state of mind is crucial for him, and I want to be at my best so that he won't absorb my anxiety.