Advocating for a child with a hearing loss.....
March 14, 2014 8:10 AM Subscribe
Need advice and tips about being the best advocate for my hearing impaired son at his upcoming SST...
posted by pearlybob to Education (9 answers total) 2 users marked this as a favorite
My son is finishing up his first grade year at a very good, high performing public school. He has a moderate hearing loss in his right ear due to a dissolved ear drum and a subsequent grafting surgery that failed to restore his hearing. He was fitted with a hearing aid last summer before school started and has adjusted well and done beautifully but the school has refused to conduct an SST (student support team) meeting or issue a 504 plan because he is performing above grade level. He is a great student, a whiz in math and excels in everything EXCEPT phonics and spelling... which I believe is due to his deficit. I have been trying since before school began to arrange a SST meeting to get him on the radar and start the process which, by law, he is eligible for because of the nature of his loss, but the school has refused (side note...this school is NOTORIOUS for not wanting to accommodate children who have disabilities until they begin to fail or show significant issues). I have been very frustrated but trying to play nice until I recently read an article talking about how young children (K and 1st grade) will often do fine because the teacher is more patient and accommodating in the classroom but they will begin to have problems as they get older and the pace gets faster. His current teacher is wonderful and I can see this scenario possibly being in our future so I emailed the pertinent people and insisted on calling an SST, including a copy of the article that I read. Well, I finally got their attention, we have one scheduled for next Wednesday. I'm not looking for special treatment or for any big changes at this point.... I just want a 504 plan for his medical device in place and the process started so that if we have problems down the road, the first few miles have been traveled so that it doesn't take so long to get him any help that he may need.
I have his medical records....his pediatrician and his ENT have both signed off on his loss and that is is eligible to at least have a 504 plan in place and possibly an IEP implemented. I'm familiar with the ADA laws and generally familiar with the process....I was a music teacher before I had kids and had to attend many of the meetings when children with various issues were mainstreamed into my classroom but that was over 15 years ago and I'm rusty on current practices...and the fact that it's my baby boy is making me naturally want to be completely current on the process and current practices... Any tips or advice from anyone more up to date on advocating for a child who is not deaf but hard of hearing. Any resources about how HoH kids need extra support with phonics and spelling would be very helpful as well.....I have found some good ones but I want to be sure that I'm fully educated since that is the area in which he struggles. This is in the US, Georgia. Heading out to run errands....will not thread sit but will be watching from my phone to answer any questions if I can.