What are our choices in caring for an infirm uncle?
September 14, 2012 1:06 PM Subscribe
What alternatives exist to nursing home care for an almost senior citizen with severe epilepsy? Lots of details follow...
posted by yellowcandy to Human Relations (7 answers total) 1 user marked this as a favorite
My uncle, just shy of his 64th birthday, cannot live on his own any longer. He has always had severe epilepsy and has petit mal, grand mal, and tonic clonic seizures several times a day. He has often injured himself during the grand mal episodes. He also has some difficulty preparing meals for himself and doing basic daily household chores.
Until a few months ago, he lived with his wife, who has since left (and is not returning). He has one nearby relative who sees him perhaps once a week, maybe less often than that, as well as an old friend who visits once every week.
He has had an in-home health aide come to stay in the house for a few hours every day, but this is expensive, and with some recent further health complications (malnutrition, a broken bone), he really needs someone to be with him most of the day.
Financially, he is only going to be able to pay for a high level of at-home care for another few months. After that, he will have no real income apart from disability benefits that amount to a few hundred dollars each month. None of our immediate family is able to become his primary caregiver, either in his current home or in ours.
My mother thinks he will be taken care of best in a nursing home (one that will accept him as a Medicaid patient when his funds run out), and while I don't disagree, I want to hear from the Green about other alternatives that we might be missing here.
He will not want to go to a nursing home and will probably have to be declared incompetent, placing my mother in conservatorship. This will be a real nightmare, and before we undertake any of this, I want to hear about what we might be missing. Thanks, everyone!