Someone developing a patient-controlled medical information portal?
July 30, 2021 11:20 AM Subscribe
Help me find the person/company developing a patient controlled medical history portal, please
Between my spouse and I, I think we have seven doctors and five different "patient portals". The quantity of information entry varies widely, from "we're just using this for messaging to/from patients" to "we enter everything we have a copy of" and the quality of the information is variable at all. In the past week (maybe two) we were working on something and heard a person on television talking about yet another patient portal - but this one was controlled by patients, and their doctors would each have to learn to use it. It makes so much more sense, to me, to have _one_ portal with _one_ copy of my medical history that I'd like to find out more - but I don't know who this person is or what their portal's name was. Does this sound familiar to anyone?
Between my spouse and I, I think we have seven doctors and five different "patient portals". The quantity of information entry varies widely, from "we're just using this for messaging to/from patients" to "we enter everything we have a copy of" and the quality of the information is variable at all. In the past week (maybe two) we were working on something and heard a person on television talking about yet another patient portal - but this one was controlled by patients, and their doctors would each have to learn to use it. It makes so much more sense, to me, to have _one_ portal with _one_ copy of my medical history that I'd like to find out more - but I don't know who this person is or what their portal's name was. Does this sound familiar to anyone?
This does not exist in the US. The situation is only marginally better in countries with sane healthcare systems. Electronic Health Records are the great white whale of technology problems. For why see Why Doctors Hate Their Computers in the New Yorker.
posted by caek at 8:55 PM on July 30, 2021
posted by caek at 8:55 PM on July 30, 2021
Best answer: Yeah, I saw this on CBS:
https://www.cbsnews.com/news/ciitizen-tech-entrepreneur-works-to-help-patients-communicate-health-history/
(but as others have noted, don't hold your breath -- people have been working on this for decades, nothing every seems to really change)
posted by Bron at 12:20 PM on July 31, 2021
https://www.cbsnews.com/news/ciitizen-tech-entrepreneur-works-to-help-patients-communicate-health-history/
(but as others have noted, don't hold your breath -- people have been working on this for decades, nothing every seems to really change)
posted by Bron at 12:20 PM on July 31, 2021
Response by poster: Thank you, Bron, that was the segment I remembered. The site mentioned is Citizen which seems to be cancer-focused although that is at first glance. It does seem to be a start, but as everyone else has said, this is a knotty problem. I worked in tech for decades so I understand some of the challenges better than most, although one of the big challenges is not tech, but rather adoption by health care providers and organizations.
posted by TimHare at 9:33 PM on July 31, 2021
posted by TimHare at 9:33 PM on July 31, 2021
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posted by mrfuga0 at 11:57 AM on July 30, 2021