Help me understand Polycystic Kidney Disease
October 18, 2012 2:52 PM Subscribe
Polycystic kidney disease - what should I be asking my consultant as a newly diagnosed patient?
posted by anonymous to health & fitness (5 answers total) 3 users marked this as a favorite
I've just been diagnosed with PKD and I want to get a better handle on how to think about it. I've read articles on the basics, but it's hard to know how much weight to put on different parts of the information.
I have an appointment with a renal specialist coming up. YANMD, but any advice for what to ask about would be appreciated, given my medical background below:
I'm male, white, early 40s. I'm in good general health except for slightly raised BP. Current kidney function is normal. My creatinine is slightly raised. The cysts were found in a scan for kidney stones (I have some of those too, also asymptomatic).
I guess I'm mainly worried about how fast things might progress, how soon I might have serious symptoms of kidney problems, and what the likelihood is of other conditions that are related to PKD (like cardiovascular problems or aneurysms). The consultant was reassuring on the phone, but I'd like to be a bit better prepared for what's worth pushing and what is actually not likely to be a problem in practice.
Bonus question: if you have PKD, how did you deal with this initial phase of uncertainty?