Need a site that focuses on diagnosis of really difficult cases.
February 16, 2016 9:53 PM Subscribe
I am writing this while at the Mayo clinic trying to find a diagnosis for my father who is very ill. After 2-3 misdiagnosis all from extremely reputable and knowledgeable doctors my family is nearing the end of our rope. I feel like we need a bulletin board or way of posting to a site where you can get informative off-the-cuff opinions from health detectives like the New York Times Diagnosis section. Another example is this DIY geneticist who found her gene mutation by seeing a photo of an Olympic medalist, link to Pro Publica story here which is fascinating. Is there anywhere to post a medical story and perhaps get some interesting new leads? With immense love and thanks, ejourdan