Recommendations for a bone marrow transplant hospital?
February 28, 2015 1:30 PM   Subscribe

A family member has been diagnosed with non-Hodgkin's lymphoma and their doctor has advised they pursue a bone marrow transplant. The doctor is able to arrange this through a regional hospital but I was asked to help research other possible hospitals where they could have this done. Do you have any specific recommendations for hospitals or facilities that do a large number of these or are uniquely qualified/specialized? Patient is based in the northeast US, please assume no insurance/cost/travel barriers at this point.
posted by brbmaroon to Health & Fitness (10 answers total) 2 users marked this as a favorite
Response by poster: Forgot to mention - please also assume we have a donor/match, etc. This question is limited to finding a facility. Thanks!
posted by brbmaroon at 1:32 PM on February 28, 2015

I would look at the major cancer hospitals in the Northeast - Sloan-Kettering in New York, Dana Farber in Boston, etc. Or some of the major teaching hospitals - for instance, I imagine other Harvard-affiliated hospitals have major bone marrow transplant programs. I have no specific knowledge, but that's where I would start.
posted by pombe at 1:51 PM on February 28, 2015 [1 favorite]

Sister of a friend did this at Johns Hopkins.
posted by gudrun at 2:06 PM on February 28, 2015

Seconding Memorial Sloan-Kettering. I know several people who have been treated there and the staff and facilities are fantastic.
posted by bedhead at 2:08 PM on February 28, 2015 [1 favorite]

I can't recommend any specific transplant hospitals, but here are some resources that may be helpful. The Blood & Marrow Transplant Information Network (BMT InfoNet) provides search functions that result in statistics on the number of transplants each center provides per year, contact information, and links. Looks like a good resource for searching.

Information on the number of bone marrow transplants performed at each center is also available from the US Dept of Health & Human Services.

Another good sign would be a hospital's special designation for transplant services by major health plans, such as the Blue Cross Blue Shield Association's Blue Distinction Centers, or Aetna's Institutes of Excellence. Keep in mind that payor networks are also based on contract/financial factors, so if the hospital doesn't participate with Aetna for any services, it won't be eligible for an "excellence" designation.
posted by Snerd at 2:57 PM on February 28, 2015 [1 favorite]

Also Johns Hopkins. On the West Coast, SCCA in Seattle and City of Hope in Los Angeles put up excellent numbers. SCCA houses the pioneer BMT program that used to be called Fred Hutchinson.
posted by SLC Mom at 4:05 PM on February 28, 2015 [1 favorite]

Recently had a friend go through this at NYC's Mt. Sinai for myeloma. He is in remission and it went perfectly. He raves about his docs there.
posted by spitbull at 6:15 PM on February 28, 2015

Johns Hopkins Hospital - they do a lot of them and the staff is wonderful. Easy to get to from the airport. A lot of local hotels work with them and there is also long and short term housing next to the hospital primarily for cancer patients/families.
posted by maxg94 at 12:32 PM on March 1, 2015

I know someone from NOLA who went up to the University of Minnesota's teaching hospital for BMT a few years ago.

I am proud of the hospital where members of my family have received care, but I can't say for sure why he went there; I expect it had something to do with his particular condition.

Sorry that this is happening to your clan. You're a good egg for helping out. Good luck to you all.
posted by wenestvedt at 7:23 AM on March 2, 2015

Just catching up to this now. My dad had his done at Beth Israel Deaconess in Boston. I'm not a medical professional, but I believe the level of care he received from doctors and staff was exemplary. They also helped us arrange temporary housing, which became necessary after discharge, but before he could go home.

Please feel free to memail me if you have any questions. All my best to you and yours.
posted by prewar lemonade at 12:12 PM on March 2, 2015

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