I am writing this while at the Mayo clinic trying to find a diagnosis for my father who is very ill. After 2-3 misdiagnosis all from extremely reputable and knowledgeable doctors my family is nearing the end of our rope. I feel like we need a bulletin board or way of posting to a site where you can get informative off-the-cuff opinions from health detectives like the New York Times Diagnosis section. Another example is this DIY geneticist who found her gene mutation by seeing a photo of an Olympic medalist, link to Pro Publica story here which is fascinating. Is there anywhere to post a medical story and perhaps get some interesting new leads? With immense love and thanks, ejourdan
I am curious to hear from mefites if you could recommend science based articles about diseases associated with indoor air and household products particularly in relation to make occupational hazard based advocacy against routine use of known toxins around children and forced on workers. [more inside]
People who have low body fat due to anorexia, disease, etc., look visibly unhealthy. People such as body builders and actors who have low body fat look healthy. I guess I can understand that "little amount of fat over large amount of muscle" looks healthy while "little amount of fat over little amount of muscle" looks unhealthy, but since people generally don't lift weights with their faces, necks, etc., it would seem that their faces would look the same, but that's not the case. What causes the unhealthiness of anorexic/disease/etc. weight-loss to be apparent in the face and neck?
Okay, that is a bit of a tongue-in-cheek title... I just started doing tech support work in a public school. I know about hand washing and using sanitizer but anyone have any thoughts about additional vaccinations beyond TDP and the annual flu shot? [more inside]
Could a specialist on the other side of the country still be considered in-network? [more inside]
A friend of mine (let's call her "Sarah") came over for dinner at my flat last week. Some way through the meal (just after the first bottle of wine was finished) she told us that her partner had recently been tested for a very serious medical condition. She then said that she "hadn't intended to talk about it". She will have recently received the results of this test, and I'm wondering whether it's appropriate to ask her what the result of the test was. I care a lot about Sarah and her partner (who is an incredibly warm and wonderful person), but I don't want to intrude. On the other hand, I don't want to be unsupportive. A few details are below the fold. [more inside]
So what's it like to be the recipient of an organ transplant and having to deal with immunosuppressant drugs? How does your life change? How often do you have to take your drugs? What are the weird details of daily life that outsiders don't know about? Are there any insurance hassles? I have a fair idea of what it's like to be diabetic because of coworkers who have this condition but I don't know anything about the life of organ transplant recipients and I'd like to know more. Any help you could provide would be deeply appreciated.
Polycystic kidney disease - what should I be asking my consultant as a newly diagnosed patient? [more inside]
So... over the course of the day my elbow has gone weird looking - it's red and swollen and sort of squooshy feeling. The skin feels warm to the touch and it is tender. Doctor Google tells me it's probably Bursitis. So... I should probably go get it checked out. But is it a rush to the docs tonight thing or a wait to tomorrow thing?
Are there risks in having botox injections for a neutropenia sufferer? A relation of mine is determined to have botox injections to get rid of wrinkles, however, they suffer badly from cyclic neutropenia which means that their immune system is often weak and have white blood cell issues and consequently they get infections frequently. I am aware that botox is botulinum toxin and I have kept trying to persuade her to see her doctor before having botox injections, to check whether they are safe for her in light of neutropenia. She is desperate to go ahead with this and it is hard to persuade her to get medical advice on this. From a layman's perspective, I am concerned that this may be dangerous for her. Does anybody with medical knowledge, perhaps haematology, know if this botox is safe for neutropenia sufferers? Many thanks!
Writing a story... What is a malady or health issue that is 1) hereditary, 2) difficult to diagnose in an unborn child, 3) makes life particularly difficult (mentally or physically) for someone who has it? [more inside]
Alright, so it's cold/flu/etc season and my roommate brought home a package of Emergen-c. He welcomed me to it, so I figured what the heck, I'll take a look at it. Then I noticed it says you can take it post-workout, which spiked my interest because I'm a self-described 'gym bum.' [more inside]
Bloating, sweet taste in mouth, and various odd sensations - what could it be? [more inside]
What are your tips for parenting small kids when you have a chronic illness? [more inside]
Is there any way to avoid getting sick when you have to touch lots of people in a developing nation as part of your job? [more inside]
Are commercial genetic DNA testing companies worth the price tag? [more inside]
Does anyone else here have a bad disease? How do you deal with it-especially the bad days? [MI] [more inside]