CFS and Disability: To Do or Not To Do
October 28, 2006 10:58 AM Subscribe
A few years back I was diagnosed with Chronic Fatigue Syndrome. For a while I was fairly dubious of this diagnosis but now that it has been confirmed as a genetic disorder I feel maybe I should get over my pride and start treating this like the life-affecting problem it is.
posted by anonymous to health & fitness (9 answers total) 3 users marked this as a favorite
I have had to make lots of compromises with my life in order to keep working and supporting myself. I stay on a strict sleep schedule even though this makes a social life largely impossible because I know I need to to stay "on the ball". I have screwed up before and feel I'm at the end of my nine lives, so to speak. I am completely sure that the problem is CFS and not competency; when I am on the ball I perform very, very well and when I'm not, I sleep through multiple alarms for days on end, fall asleep at the drop of a hat, can't focus, etc.
Anyways, I'm not insured and I really think I should be. Because I can't really handle standard full-time work (I have 2-3 part time jobs and make sure one allows me to work at home) I don't really see finding a job with benefits in my future (I also tend to end up with small companies and nonprofits, due to the flexibility and I guess I am a bleeding heart). I think I should try to get on disability for the Medicare.
But I'm worried it will be a huge resource-sapping endeavor with no pay off. I really can't afford to spiral down because of something to help myself. I also can't afford a lawyer. Hivemind, any experience with getting disability insurance for such a borderline-legitimate illness?