Endometriosis referral: Seattle edition
August 12, 2014 1:43 AM Subscribe
After years of chronic pelvic pain from fibroids, cysts and likely endometriosis, I've reached my breaking point. The UWMC clinics refuse to even consider surgery for any of the above and are prescribing Lupron as my next option (after 2 IUDs, Lunelle, Depo, and The Pill) for probable endometriosis. Help me find a Seattle OB/GYN who will do the surgery!
posted by frizz to Health & Fitness (6 answers total) 3 users marked this as a favorite
My story is much like those of previous MetaFilter questions. I had severe bleeding from my fibroids, and was given the Mirena IUD. I'm on my second now, and the bleeding is better. The down side is that the IUD is associated with the increased production of fibroids and cysts, so round and round and round we go.
I've tried many treatment options over the years: Lunelle, Depo and most recently The Pill in combination with the Mirena IUD. The pain has only gotten worse. My ultrasound from last week shows 3 likely endometriomas on my left ovary (all small), nearly a dozen small fibroids, and a significantly enlarged uterus (300cc instead of my normal 200cc). And note that most endometriosis isn't seen on an ultrasound, so I have no idea how bad that is.
My PCP understands my years of suffering and has prescribed me pain meds. Even on 10mg of oxycodone, I'm still experiencing significant pain. I am unable to sleep more than a couple of hours, am nauseous and vomiting, and have started feeling woozy (<< technical term). With these symptoms and that ultrasound, I thought I was the perfect candidate for surgery.
I was wrong.
The OB/GYN I saw for the first time this morning prescribed Lupron -- which basically seems like the worst drug EVER. She didn't bat an eye about prescribing it, and didn't share any of the horrific side effects. After another sleepless night of internet searching, I'm terrified to take this drug. But she said that treatment for endometriosis is no longer about surgery but hormonal treatments (none of the previous ones helped.)
How can I find a doctor who is willing to at least do an exploratory surgery to find out what the heck is causing my pain? The OB/GYN put in a referral to a pain clinic, and I'm grateful for possible short-term relief, but ... um ... can we cut out the fibroids, cysts and endometriomas and give me a blank slate? Or is that completely unrealistic?