Thyroid Issues, maybe? Where to go when your tests are normal
August 8, 2014 9:23 AM Subscribe
I've got what looks and feels like textbook hypothyroid. I am having trouble getting an endocrinologist to see me since my test results are in the normal range. Have you dealt with this?
posted by anonymous to Health & Fitness (10 answers total) 15 users marked this as a favorite
My doctor has diagnosed me with fibromyalgia, since I hit almost every hypo symptom but my thyroid test results are in the normal range. I had the TSH and the free T3 tests done, but I understand there are more tests that could be done. My GP has referred me to endocrinologists but they don't want to "waste my time" since my test results are normal.
I seem to have inflammation issues that come and go. My family and I got food poisoning earlier this year that my family shook off but turned into a full blown auto-immune attack that was so painful I was bedridden and could not work for a while.
My grandmother was hypo, and had her thyroid removed when she was in her 50s. My mother was diagnosed with fibro and then Graves' disease. I would really like to feel better before my test results go out of normal range if possible and not 20 years from now.
I eat a very healthy diet (modified Paleo, since I am intolerant to wheat and corn), am mindful of sugar, and don't drink much anymore (once a week maybe, and lightly). I have less pain if I watch my diet. I self medicate with vitamins, turmeric, and a small chunk of a pot brownie before bed for inflammation. All of these things make me feel about 70% of my normal, painfree, clear thinking, non-tired self, but I am still really weighed down by whatever this is.
I did very well from an inflammation and clearing-brain-fog standpoint on prednisone when I was bedridden with acute pain, but the side effects were a nightmare. I took ephedra for a week and that was a great help. I had read a very old study that was showing higher conversion of T4 to T3 on ephedrine, which made me wonder if that is part of the issue. I felt like my old self again. However, I'd rather not self-medicate if I can help it.
I have a big hunch that killing the inflammation and maybe natural thyroid or T3 would help, but I don't know how to convince someone to try me on something. I am so desperate to feel better and think clearly again.
I know YANMD, for which I am glad right now, since I am out of ideas. What would you do or did you do, if this was you? Would you get a complete thyroid/adrenal kit and test yourself? Are there doctors out there who will treat symptoms? I am in Western Washington State (US) if you actually have a name. Thank you for reading.