Not quite a perinatologist - high risk neuro-pregnancy speciality?
December 4, 2013 9:51 PM Subscribe
I want a second opinion on getting pregnant, but don't know who to ask as my diagnosis came from a rheumatologist and gynaecologist team, while my neurologist had previously said somewhat differently, that I could not risk another pregnancy. I don't know whether to look for another team diagnosis or if there is a specialist for my particular case.
posted by kittypaw to Health & Fitness (10 answers total)
My current diagnosis is frequent mild trans-ischemic strokes, with no known cause, although I am considered seronegative antiphospholipid syndrome, having had a dracula's worth of blood tests done. I have had epilepsy etc, and cardiological causes ruled out, although I have a mild mitral valve prolapse. I am on plavix and aspirin (I had TIAs on aspirin alone, and once on the combined dose).
I have a history of repeated early miscarriages, and had one pregnancy with heparin and aspirin, although due to a separate trauma, she was delivered at 30 weeks, which in hindsight (the TIAs went undiagnosed for a long time, until I had one and fell while carrying the baby in my arms, and got worried enough to go to the ER) probably saved both our lives as the pregnancy was increasingly complex.
I can't risk going on birth control or having my tubes ligated (no elective operations), and my husband is willing to have a vasectomy. When a doctor tells you that you have a 50% risk of death with another pregnancy, you think twice. The current advice is that if I accidentally got pregnant, I should very strongly consider an immediate abortion.
Still, before we make a final and permanent decision, we would like to get a second opinion, as for the past two years we have been told to go ahead and try for another baby.
I have a rheumatologist, a cardiologist, a neurologist, a vascular surgeon, and a gynaecologist. They all work at the same hospital. I would like to go to another hospital for a second opinion, but I have no idea what specialist to look for, and I don't want to ask my current doctors for a recommendation because I find this very emotionally tough and have gotten a lot better care by working hard to be the calm and reasonable patient, not a baby-crazy hysterically sobbing patient.
So who do I look for? I need like a neurologist-gynacologist, does such a unicorn exist?
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