High blood iron, contradicting blood results. How do I advocate for myself at my next appointments?
August 29, 2012 1:17 PM Subscribe
Went to the doctor for extreme fatigue, breathlessness, hair thinning, joint pain, and irritability. Blood results show high iron. How do I advocate for myself properly during my upcoming appointments?
posted by Eolienne to Health & Fitness (19 answers total) 3 users marked this as a favorite
Worsening fatigue (it’s difficult just to stand and talk at the same time or put on a small amount of make-up), new symptoms (bleeding gums, bruising more easily than usual, and pale green stool – things I know can be minor or unrelated), a recent few months of heavyish drinking, and lots of reading up on hemochromatosis had me a little freaked out for a couple of days. I’m calmer today based on the assumption that I must be mistaken and/or overreacting, and that any number of things could be happening. (My ferritin is low normal, CBC all normal, I have killer menorrhagia, my family history is full of various anemias, and I'm only 36, so I can't actually have hemochromatosis, yes? It's probably just another freakish anemia.)
I have a follow-up tomorrow. My doctor is an internist. Will I (should I) be moving on to a specialist? What can I expect next? What kind of tests can I expect to be run? Are there things she should absolutely be testing or telling me, that I should be concerned about if she doesn’t?
(Related: how do I find blood banks in San Diego County that accept donations from patients with high iron?)