Psoriatic Arthritis. Now what?
April 24, 2012 10:16 AM Subscribe
Psoriatic arthritis. Now what?
posted by KathrynT to Health & Fitness (22 answers total) 9 users marked this as a favorite
After months of horrible joint pain, my beloved husband has been diagnosed with psoriatic arthritis. He started treatment two and a half weeks ago, a burst-and-taper dose of prednisone plus 15 mg of methotrexate once a week. The prednisone was GREAT while he was on the high dose (20 mg), but as soon as he started tapering it down, his pain started coming back. He is not back to baseline, but he is definitely impaired in his daily activities.
He has a rheumatologist whom he likes very much, but the office is busy and there's a couple day turnaround on phone calls. My husband is 43 and until this started, he was a healthy, active, vigorous man. The joint pain has taken away a lot of things that he loves to do, including year-round hiking and bike commuting, and he is sad and angry a lot of the time.
Will it get better? Is there anything he should be pushing his rheumatologist to do or try? The more woo-woo side of the family is pushing "anti-inflammatory diets" and stuff like that; is there anything to that? I know prednisone is bad for you long-term, but how long-term is long term? Sadly the biologics aren't covered by our insurance, so those are probably off the table for now.
Even more than that, what do I need to know to support him through this? The vast majority of the information about autoimmune polyarthritis that's out there on the internet is about rheumatoid arthritis; are they similar enough that it'll be useful to me to read those? I want to do everything I can to help him, but I feel like I'm operating in a giant vacuum.
Any wisdom you have to offer would be appreciated. I know there are things that suck worse than this, but gosh, this actually sucks quite a bit.