Intense, prolonged brain fog and feeling of awfulness. Have already seen doctor.
posted by zeek321 to health & fitness (44 answers total) 13 users marked this as a favorite
I figured I'd give this a shot. I went to my doctor a month ago and he did all the "usual" blood tests and everything is in the normal range. I'm going to go back and tell him I'm still not better. He asked a miliion questions which was great. I'm going to give him the list I made below.
Recently all these things got pretty intense (reason for doctor visit), and that made me realize I've been faintly feeling most of them for years--it made a lot of puzzle pieces fall into place about how these issues have affected me and why I've made certain life choices.
1. Brain fog, feeling stupid, feeling drunk, difficulty finding words, difficulty forming thoughts, difficulty doing my job and following conversations, extra effort to enunciate clearly and words still sometimes slur together, thinking takes effort, pressure in head, eyes don't want to focus. Sometimes people ask if I'm drunk or high. (I don't drink at all. Never really have. No drugs.) Friends haven't noticed a recent change, except that maybe I'm a bit quieter. I do get a funny look when I slur a couple words together or involuntarily mumble.
2. I don't look forward to sleep--it's almost as if sleeping is useless. I fall asleep within twenty minutes and wake up naturally after eight hours but don't feel refreshed at all--I'm spaced out and non-functional for 45 minutes after waking up. By 2pm I'm completely useless. My eyes always feel like they want to close. Girlfriend confirms that I don't snore. I *don't* wake up gasping. I remember my dreams. I seem to sleep through the night. I move around a lot before falling asleep, but that's it. (My Dad is thin and does have central and obstructive sleep apnea though... I'm quite thin too.) I can't really do things at night for fear of being non-functional the next day. When I get home doing anything but sitting around takes a massive, massive act of will. I somehow manage to cook.
3. Slightly achy and sore all the time, feel weak and fatigued, trouble maintaining weight, when lifting weights over time I gain strength slowly and have trouble keeping it. If I'm standing I'm generally leaning against something. Always moving my head and popping the joints in my neck. Neck never feels like it's lined up quite right.
4. Sometimes when I'm just standing around I feel like I'm fainting but never do. I lose vision sometimes when standing up abruptly, but I know that's not uncommon.
5. Always thirsty. Drinking lots of water doesn't seem to do anything. Adding electrolytes to my water doesn't seem to do anything.
6. I have a faint rash on both sides of my waist but not in the middle. Sometimes my ears are itchy but nothing visible. I don't have bags under my eyes, but the inner corners of my eyes are always dark. Tongue looks normal.
7. One good thing: I used to be completely unable to tolerate high and low temperatures, but neither bothers me anymore.
8. Restricted diet but not too weird: I haven't eaten eggs, milk, wheat, or corn for years. Went on a low salicylate diet two weeks ago with maybe a slight benefit. I take a non-generic, hypoallergenic multivitamin. Not vegetarian/vegan.
9. Glands (or whatever they are) on both sides below my jaw always feel swollen.
10. Sometimes, a ghastly, crawly feeling like wanting to claw out of my skin. Sometimes a tendency to breath hold. I never feel particularly panicked, though. Heart rate doesn't go up, breathing generally slow and deep.
11. Ventilation in my apartment isn't that great, but wooden floors and a HEPA air filter.
12. I was in therapy on and off for a couple years. *Mild* anxiety, never depressed, don't feel depressed now. Still experience joy, interest, etc. Life situation not awesome but fine. Have friends, family, and interests. This is not psychological. (I have experienced prolonged, intense stress in my life, though.)
13. My sleep hygiene is pretty awesome. White noise, very dark, room temp is cool, usually sleep alone.
14. I did find some sort of tick creature (half the size of a dime) on me many, many years ago. After much flicking with my finger, it finally let go.
15. Sometimes my girlfriend says my skin is very, very warm. My core temperature tends to be below 98.6, though.
16. Excessive earwax production my entire life. Eardrums quickly get covered again after ears are cleaned out. Eustachian tubes always feel clogged. Turbinates in nose chronically swollen. Postnasal drip all the time.
17. I look tan, athletic, and healthy. Sigh.
So, overall, I've been limping along for about a decade (I'm 29 now) thinking that this was normal, but now that things have gotten worse, I realize things haven't been normal for ten years. Everything takes too much effort and the situation is affecting my relationships and work. Still limping along, calm, taking care of myself, but frustrated and concerned. It's been like this for weeks. I'm going to go back to my doc, and my health insurance is ok, but I'm a student and visit/lab copays, etc. would be a constant drain if he even deigns to go through the million tests that will probably have to happen.
Ideas? I don't really want to manage symptoms. I want to fix it...