NoThyroidFilter: People with post LID, hypo hell and RAI experience: how long did it take to recover and get back to "normal" (normal with regards to the necessary extreme hypothyroid state)? Recommendations for helping me get through the recovery period?
Background: A few months ago, I had a total thyroidectomy
. 10 days post-op, the pathology report came back with the bad news: 2 tumors: a follicular carcinoma measuring 11.1 x 8.2 x 5.1 cm and a papillary carcinoma measuring 1.7 x 1.5 x 1.0 cm. Holy crap.
In early December, I moved from Levoxyl 250mg/day to Cytomel 25mg 2x/day in prep for my first body scan and radioiodine. On 12/18, I stopped all meds and started the LID (low-iodine diet).
Over the course of the next three weeks, I sank deep into hypothyroid hell. On top of OMG CANCER!, I was told to expect extreme moodiness, weight gain, anxiety, confusion and fatigue. Bingo! Check, check and check. With minimal caloric changes,I put on roughly 20lbs. I know the vast majority of this is water weight. I've developed the classic myxedema, especially in my face (as illustrated here (me)
Last week, I had my Iodine-123 tracer followed by the whole body scan. The next day, I received 150mCi of Iodine-131 as the ablative dose. (I have a followup scan in two days).
Radiation isolation and LID ended on Saturday (yay!) and I got to go back on my Levoxyl (now increased to 300mg/day) with the addition of Cytomel for the next few weeks.
So here I am, day 2 back on thyroid meds, eating a low sodium diet, drinking plenty of water, but I'm still so bloated! My fingers are like sausages and they feel arthritic. My clothes don't fit and I've developed a waddle when I walk. I'm still very moody (more angry than sad), cloudy mentally and fairly tired. I'd love to go out and go for a walk, but I'm also at the tail end of a bad bout of bronchitis, so I don't want to exacerbate that with exercise in the frigid air. I have a followup with my endocrinologist in early February, but I'm probably going to call tomorrow to ask anyway. I know it's not going to change overnight, but how long can I expect this to last? Weeks? Months?