Should I have prenatal cystic fibrosis screening?
December 5, 2008 3:10 PM Subscribe
Is there a more affordable way to obtain prenatal cystic fibrosis carrier screening? How important is it to be screened?
posted by anonymous to health & fitness (12 answers total)
I'm 11 weeks pregnant with my first child. The doctor has offered/recommended that I be tested for being a cystic fibrosis carrier. It's my understanding that this is a standard offer to childbearing women.
My otherwise wonderful insurance does not cover genetic testing except in very limited cases which certainly don't apply here. I called my hospital's billing department and just found out that the test runs almost $1300. Ouch. The billing woman did offer to reduce that by 50%, so our out-of-pocket would be about $750. If I tested positive, my husband would need to be tested too for an additional $750.
That's a lot of money, but we can afford it if we need to. On the one hand, I'm tempted to skip it, because the odds are in our favor (there's a 1 in 29 chance each that we would be affected, and a 25% chance of having an affected baby if we're both carriers). However, we would definitely terminate the pregnancy if the baby was found to have cystic fibrosis, so in that light, $750 doesn't seem like a lot of money.
So, two questions I guess. 1) Is there any way I could get the test cheaper? 2) Should I get the test? What did you do and how did you make the decision. Since we would act on the eventual results of the tests, my gut says we should go for it, but I'm curious about how other people have thought about this.